Welcome to a new kind of rare disease event. 

24 Hours of Rare is the only virtual event designed to unite the global rare disease community in celebration of Rare Disease Day.

How it Works

On February 28th, we will be highlighting the best of the global rare disease community, straight-up at noon, time zone by time zone. Don't miss the amazing work being done by rare advocates, patients, medical professionals, and researchers around the world as we celebrate the global rare disease community, live from time zones around the world. 

Come back on March 1st for a five-day series of panels, breakouts, workshops, and networking sessions focused on the topics and issues impacting the global rare disease community. 

• March 1st - Patient Day 
• March 2nd - Caregiver Day 
• March 3rd - Medical Professional Day 
• March 4th - Non-Profits/Advocate Day
• March 5th - Industry Day 

Check out the agenda tab for additional details!